The mission of the Pediatric Craniofacial Surgery Program of the Rosa Thay Nguyen Children’s Foundation is to deliver first world craniofacial surgical care to children to facilitate craniofacial research and education nationally and internationally.
Children born with congenital facial deformities suffer from physiologic and psychosocial disturbances. Congenital craniofacial deformities range in severity from the common cleft lip and palate to severe skeletal malformations that can affect multiple bones of the face or skull. Such anomalies can lead to significant, life-threatening issues such as airway compromise. Socially, children with uncorrected facial anomalies grow with the stigma of being abnormal. Many suffer from low self esteem and some may never attain the confidence to realize their potential. Surgical correction requires highly trained pediatric craniofacial surgeons and may entail a multi-stage, multi-disciplinary, and multi-year effort to accomplish.
Our objectives are to deliver surgical and multidisciplinary care initially to underserved Southeast Asian children with craniofacial anomalies and to facilitate craniofacial research and education to further improve children globally. Currently, there are no craniofacial centers that exist in Southeast Asia with the exception of Singapore. Thus, care for all children with craniofacial anomalies outside of Singapore is provided via philanthropic efforts. The Craniofacial Surgery Program of the RTNCF aims to both deliver care and education to local physicians and surgeons for the purposes of establishing a center of excellence.
Surgical Care: The primary role of the Craniofacial Surgery Program will be to facilitate the surgical care of pediatric patients with craniofacial deformities. Surgical correction will occur at a pediatric hospital with an intensive care unit. Surgical care will be provided initially on an annual basis with increasing frequency depending on the availability of funds. The initial goals will be to perform outpatient surgeries such as cleft lip repair on early trips, followed by surgeries of increasing complexity over time.
Multi-disciplinary Craniofacial Team Establishment: As care for craniofacial children does not begin or end with surgery alone, establishment of a local multi-disciplinary team of physicians is essential to any center of excellence. This local team will consist of pediatricians, dentists, orthodontists, speech pathologists, audiologists, and surgeons.
Education: The educational program of Craniofacial Program will involve both trained local surgeons as well as trainees from the United States and abroad.
Research: Research in the etiology of craniofacial deformities and outcomes studies are essential components to the advancement of the field. All of the patients treated by the Program will be automatically placed into a database for the purposes of charting their progress as well as research in surgical outcomes.